The final straw for Carolyn Alves came last fall when she tried to help her daughter Cecelia dress for kindergarten.Continue reading.
The volatile 6-year-old had worked herself into a frenzy as she tried on outfit after outfit, rejecting each as unacceptable. The tantrum at full bore, she scooped up a pile of clothes and hurled them at the front door of the family's Spanish-style bungalow in Glendale.
The clock ticked past the school's 8 a.m. bell. Alves pulled her wailing child into her arms and held her on the couch. After several minutes, Cecelia stopped, took a breath and announced that she was ready to go to school.
"It was like watching someone who was having a mental breakdown," Alves said. Then "a switch went off and she went back to being normal."
Alves and her husband, Marcos, have consulted five doctors and therapists in the last four years. Cecelia has been diagnosed with a smorgasbord of psychiatric disorders — including the controversial diagnosis of child bipolar disorder — in addition to being called a normal kid.
Experts in pediatric mental health readily acknowledge that their failure to pinpoint the problem with children like Cecelia makes a difficult situation worse. And some of them are pressing for an unconventional solution: a new diagnostic category called disruptive mood dysregulation disorder, or DMDD.
Creating a diagnosis is considered a radical step in mental health circles, and the proposal has sparked much debate. The controversy underscores the fact that therapists simply don't know what to make of the estimated 3% of children in the U.S. who suffer from severe irritability and emotional outbursts.
"Everyone wishes we could have a genetic test or a blood test" to determine which disorder a child has, said Erik Parens, senior research scholar at the Hastings Center, a bioethics think tank in Garrison, N.Y. "Unfortunately, nature doesn't work the way we wish."
As a result, parents may be told their children have conduct disorder, oppositional defiant disorder, attention deficit hyperactive disorder, depression or bipolar disorder — if they get a diagnosis at all.
My son wasn't diagnosed until he was almost in kidergarten, and it's taken a long time to reach a functioning routine that allows both him to do well and a little peace for mom and dad. And one thing I learned the other night at the class is that there's a social stigma attached to these disorders. And honestly, I didn't take them all that serious myself until I had to deal with these issues as a parent. And it must be hell for parents who aren't getting good medical advice. More on that at the Times.
Regardless of the medical advice, it is indeed hell to deal with the social stigma of a difficult child.
ReplyDeleteFolks do indeed judge you for things over which you have little control.
Ah well. Thank God them kids mostly grow up and become responsible for themselves, eventually.
Good luck and God bless,
Linda
Regardless of the medical advice, it is indeed hell to deal with the social stigma of a difficult child.
ReplyDeleteFolks do indeed judge you for things over which you have little control.
Ah well. Thank God them kids mostly grow up and become responsible for themselves, eventually.
Good luck and God bless,
Linda
Thank you for this post. My 4 year old son has some special needs issues, I'll be reading the article you linked. Best wishes to you and your family.
ReplyDeleteLinked here:
http://zillablog.marezilla.com/2011/10/im-getting-root-canal-hooray.html
Dr D.,
ReplyDeleteI don't know the details of your specific situation, but whatever you do, don't let them turn your child into a zombie with crap like Ritalin.
That stuff is bad news.
-Dave
I've been reading an awesome book on the relationship of gluten to a wide number of problems, among them mood problems and ADD/ADHD. It is called The Gluten Connection by Shari Lieberman.
ReplyDeleteMy family has non-celiac gluten intolerance and the gluten-free life has been life-changing. Good luck.
You might, if you haven't considered it, try a gluten-free diet for your child. The diet isn't hard, isn't expensive, you don't need a doctor's prescription, and it has helped many people