Racial Disparities in Autism Services

On any issue like this you'll always get the inequality arguments. From the continuing series on autism at Los Angeles Times, "Warrior parents fare best in securing autism services":

Public spending on autistic children in California varies significantly by racial or ethnic group and socioeconomic status, according to data analyzed by the Los Angeles Times.

For autistic children 3 to 6 — a critical period for treating the disorder — the state Department of Developmental Services last year spent an average of $11,723 per child on whites, compared with $11,063 on Asians, $7,634 on Latinos and $6,593 on blacks.

Data from public schools, though limited, shows that whites are more likely to receive basic services such as occupational therapy to help with coordination and motor skills.

The divide is even starker when it comes to the most coveted service — a behavioral aide from a private company to accompany a child throughout each school day, at a cost that often reaches $60,000 a year.

In the state's largest school district, Los Angeles Unified, white elementary school students on the city's affluent Westside have such aides at more than 10 times the rate of Latinos on the Eastside.

It might be tempting to blame such disparities on prejudice, but the explanation is more complicated.

“Part of what you're seeing here is the more educated and sophisticated you are, the louder you scream and the more you ask for,” said Soryl Markowitz, an autism specialist at the Westside Regional Center, which arranges state-funded services in West Los Angeles for people with developmental disabilities.

In both the developmental system and the schools, the process for determining what services a disabled child receives is in essence a negotiation with the parents.

RTWT.

The photos themselves are intense. And some of the family vignettes are sad. But then, that's exactly what this series is about: building an agenda for more state funding for those who're underserved --- and the program's already an entitlement, spending billions annually. The problem is those with less economic resources lack the skills and time to navigate the system and secure the lion's share of support.

And while autism is pretty undefined --- and yeah, it's probably over-diagnosed, ---I know from my own's son's experiences that there are real health issues at stake for families. And again, look at those pictures.

Previously: "Unraveling Autism."